Rare Patient Voice Review: Worth It? (Not for Everyone)

Rare Patient Voice is a website that claims patients and caregivers can earn extra cash by participating in paid research studies pertaining to their condition or the condition of the patients they provide care to.

It’s definitely an interesting way to earn, but is it worth it?

This Rare Patient Voice review will give you insight into what the site really has to offer so you will know exactly what to expect from it. Then, you can properly identify if this is the right opportunity for you to earn some cash or not.

So, let’s go ahead and take a closer look at Rare Patient Voice, shall we?

What is Rare Patient Voice, and what does it offer?

According to their website, Rare Patient Voice is a platform that connects patients and family caregivers of rare and non-rare diseases with opportunities to share their opinions with companies and researchers by participating in all types of research studies.

It is indeed a legit site since you can really earn by participating in the said research studies.

However, this fact doesn’t necessarily mean that it is worth it or that it is even the right opportunity for you. To find out if you should sign up for this site, you must first understand how it works. And the only way to do that is to take a closer look at the earning opportunities it offers so you will have a clear idea of how much time and effort is required to earn from it.

So, here’s how to earn from Rare Patient Voice.

Option 1 – Paid Research Studies

The primary way to earn from this site is to participate in one of their paid research studies.

Once you become a member of their panel, you will receive invites to participate in a paid research study via email, so make sure to check your email inbox regularly. Make sure to also whitelist Rare Patient Voice so that the invite won’t go into your spam folder.

However, unlike other platforms that offer the same type of earning opportunity, Rare Patient Voice is quite unique because it will only invite you to participate in a study that is related to your condition or the condition of the patient you care for. So, you should only go for this opportunity if you have an existing medical condition or if you are a caregiver.

Rare Patient Voice’s goal is to help companies and researchers find the right treatment or even cure for various medical conditions, so they always make sure that the participants in the studies can really give the answers the researchers need. That is why if you don’t have any existing medical conditions or if you are not a caregiver, then I suggest you don’t even try to sign up. It’s not an ethical way to earn if you just lie to earn a few bucks.

But if you are eligible, then there are a few things you need to know about their paid research studies.

Most of the time, these studies are in the form of surveys. But from time to time, there will be studies that require more time commitment on your end (phone or online interviews, focus groups, etc.).

For surveys, don’t expect to earn a lot from them because it doesn’t take up a lot of effort and time to complete it. But for studies that require quite a bit of time to complete, you can expect to earn a decent amount once it is completed.

Once a study is completed, you will get paid immediately. Later, I will discuss how you will get paid. While you can potentially earn a decent amount from Rare Patient Voice, the opportunities to earn won’t be very common. You can go for weeks or even months and not receive any invitation to participate in a study, so it’s not something you can reliably earn from, in my opinion.

Option 2 – Referral Program

Another way to earn from Rare Patient Voice is through its referral program. You can invite other patients or caregivers to join the platform by sharing your invite link with them.

Once they click the link and sign up, they will become your referral. As a reward, you will receive $10 once your referral becomes a member of the panel. However, unlike the referral programs of other survey sites, you’ll have to request a referral link from Rare Patient Voice (refer to the photo above).

They don’t just give away referral links to anyone. You’ll have to fill out a form and wait for Rare Patient Voice to send you your referral link. When this happens, you can then share your link via email, in your newsletters, in online support groups, or even on social media to get referrals.

It’s a simpler way to earn as long as you get your referral link, of course. You’ll also be doing researchers a favor because you are helping them find potential candidates for their research.

Recommended: Check Out the Top Survey Sites in Your Country

How do you get paid?

As explained earlier, you will get paid immediately once the study is completed. But the question is, how exactly will you be paid? The video below will tell you exactly the payment methods the site uses.

If you live in the US, then you will be paid via check, and it will be sent to you via postal mail. If you live somewhere else, you can get paid via a prepaid digital Mastercard or an Amazon gift card depending on the mode of payment the study is using.

You don’t need to earn a specific amount just like with other survey sites to receive your earnings. Every time you complete a paid research study, the check will be mailed to you (if you live in the US).

Overall, I would say the payment method of Rare Patient Voice is relatively straightforward. However, the payment method they use is a bit outdated, in my opinion.

You will not immediately receive your earnings. If you are looking for sites that offer a more convenient payment system, I recommend you check out the top sites that pay via direct bank transfer instead.

How much money can you make?

As I’ve mentioned earlier, the opportunities to earn from this site aren’t that many since the studies have specific requirements. Unless you have multiple medical conditions or you provide care for people with various medical conditions, then it’s hard to expect a lot of opportunities to earn.

As for how much you can earn from a study, that will also depend on the type of study you participate in. For surveys, don’t expect to earn a lot. But for studies that take a bit of time to complete, you can expect to earn somewhere around $100 to $300 (depending on the longevity of the study).

The site pays a decent amount compared to other survey sites, but as I’ve said, qualifying for a study is quite hard. That’s why I would say the overall earning potential of Rare Patient Voice isn’t that great.

The true value that this site offers, in my opinion, is that it helps researchers find the right treatment or even cure for various medical conditions. So, you are effectively advancing medical technology by participating in these paid research studies.

Can you use it on mobile?

The only type of study you can do using a mobile device is a survey. For other types of studies, you’ll need to use your phone or even a computer.

The site doesn’t have a member dashboard you can log in to check for available studies, unlike other survey sites. As long as you can check your email inbox (which you can conveniently do on a mobile device) to see if there are any existing invites, then you are good to go.

Who can join Rare Patient Voice?

Rare Patient Voice is only available in certain countries, specifically the US, UK, Canada, France, Italy, Spain, Australia, and New Zealand. If you live somewhere else, then this is not for you.

Plus, as explained earlier, you have to have an existing medical condition or a caregiver to join this panel. To sign up, you must answer a survey.

This survey is designed to gather information about your medical condition (or the medical condition of your patient). You have to answer truthfully so that Rare Patient Voice will know which studies to send your way.

After you are done with the survey, the site will send you a verification email. Just click the link in the email to submit your application. Rare Patient Voice will review your application and will let you know if you have successfully joined the panel. This process can take 3 to 4 weeks to finish, which is quite a long wait, in my opinion.

If you get accepted, then you just have to wait for any invites to participate in a study, so make sure to check your email inbox regularly when that happens.

Can you get support?

If you have any questions about the site or your account, you can check out the FAQ section of the website. It discusses most of the basic topics you need to know about the site. If your concern is about the current study you are participating in, then you’ll have to direct your inquiries to the project manager. The contact information of your project manager will be shown in the invitation email.

But if your concern is about the site or your account, you can just email the site directly at ContactUs@RarePatientVoice.com. Overall, I would say the site does provide decent support to its members since it offers a convenient way for you to request assistance.

Final Verdict

Rare Patient Voice is a legit site that will let you earn by participating in research studies of various medical conditions. It has its merits, but it also has some limitations you need to consider.

Let me finish this review by summarizing its pros and cons to give you an overview of what it has to offer. Then you can decide if this is an opportunity you should go for or not.

In my opinion, Rare Patient Voice is only truly for people who have existing medical conditions or caregivers. If you are not one of them, then this opportunity is not for you, and you shouldn’t even bother signing up. You should find other ways to earn because you have no business joining this panel.

But if you are qualified to join, then you need to be patient because you won’t always be offered opportunities to earn. The real value this site has to offer, in my opinion, is that it helps the advancement of medical technology because you will essentially be helping researchers find the cure or treatment for certain medical conditions. That, in my opinion, is more valuable than the money you can earn from the site.

But if you are just looking for a way to earn extra cash, then I recommend you check out the top survey and GPT sites in your country instead. The sites on this list all have good earning potential, and most of them also offer convenient payment methods.

Plus, you will definitely find a site you can join regardless of where you live.

If you have any comments, questions, or have any experience with Rare Patient Voice yourself, I would love to hear from you in a comment below.